Groundbreaking New Study on Rett Syndrome
Dr. Stefan Dimitrov and his collaborators published their study in Science that changes the textbook information on Rett Syndrome (DOI:
Read MoreYear: 2021
Training Workshop on Rare Disease Biobanks from EJP
You can access the whole programme from here: Click here to register
Read MoreYakup’s Journey to Hope: An Inspiring Rare Disease Patient Story
This is the story of Yakup who was born with a rare genetical condition. Having been undiagnosed for years left
Read MoreRare Diseases Day 2021 at IBG
As the Rareboost Team, with the help of İBG members who support the cause, we prepared a short video for
Read MoreInternational Rare Diseases Day 2021 is Approaching
Each year, the last day of February is marked as the International Rare Diseases Day. The main aim is to
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