RareBoost: Research and innovation for rare diseases
RareBoost is a Horizon 2020 ERA Chairs program-funded project at Izmir Biomedicine and Genome Center.
The main goal of the RareBoost ERA Chair project is to establish the IBG as a center of excellence in Rare Disease research and innovation.
Our Goals
Rare Diseases Research and Innovation
Enhancing IBG’s research and innovation capacity to meet international excellence standards through strategic partnerships with global leaders and integration into Europe’s network of centers of excellence.
Rare and Undiagnosed Diseases Platform
Establishment of a specialized unit for Rare Diseases at IBG, RUDiP, comprising of scientists with unique capabilities and expertise dedicated to advancing our understanding of rare and undiagnosed diseases.
Rare Diseases Research Capacity Building
Promoting the research and innovation capacity of IBG and its connected institutions, which will significantly contribute to the European Research Area’s research ecosystem and enhance its integrity.
Rare Diseases Research Network in Turkey
Establishing a collaborative network on Rare Diseases in Turkey, providing the resources and infrastructure of IBG’s Rare Diseases Unit to national partners in the academic, private, and public sectors.
Soft Skills Capacity Building
Guiding the professional development of IBG’s researchers by enhancing their social and career skills in management, innovation, and administration, and by boosting their training and teaching competencies.
Knowledge Dissemination and Communication
Leading the dissemination of knowledge from IBG’s Rare Diseases Unit to national and international partners, and enhancing public awareness of rare diseases through effective science communication.
RareBoost Activities
We are tackling the challenges of rare diseases through diverse collaborative initiatives.
Rare and Undiagnosed Diseases Advisory Councils
We bring together clinical researchers in the Aegean region with RUDiP researchers to collaboratively solve unresolved or undiagnosed patient cases in monthly advisory councils.
RareBoost Seminars
Each month, we host a rare disease expert at IBG to share insights and advances in the field.
Please visit the News and Events tab to find out about our upcoming events.
Teaching and Training Activities
We host monthly sessions to enhance the professional development and soft skills of IBG researchers.
To see the upcoming events, please visit the Training tab.
RareBoost Rare Diseases Research Needs Assessment
Survey and Workshop Report
RareBoost conducted a ‘Status and Needs Assessment for Rare and Undiagnosed Diseases with Research Area Stakeholders’ survey, followed by a workshop to assess the research needs for rare diseases in Turkey.
The results of the survey and the recommendations from the workshop have been published in a report. The report can be downloaded from the link.
For questions and inquiries, or if you would like to work with us, please contact us.
Latest News
- RareBoost represented at the 26th National Pediatric Neurology Congress
- IBG T&T Session: Body Language & Effective Presentation Techniques – Dr. Kaan Mert Güven, Müderris Training & Consultancy
- RareBoost Seminar – Prof. Devrim Gözüaçık ‘Discovery of molecular regulators of autophagy and implications for rare diseases, neurodegeneration and cancer’
- Türkiye National Mirror Group (NMG) Held Its First Meeting Under the ERDERA Work Package 23
RareBoost Newsletter
If you would like to follow our updates, please sign up for the quarterly RareBoost newsletter.
Disclaimer: RareBoost is funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union. Neither the European Union nor the granting authority can be held responsible for them.
