Rare and Undiagnosed Diseases Research Area Stakeholders Status and Needs Assessment Workshop

As part of the RareBoost project, “Rare and Undiagnosed Diseases Research Area Stakeholders Status and Needs Assessment Workshop” was held at the Izmir Biomedicine and Genome Center on December 22, 2023.

The workshop brought 68 experts, officials, and advocates together to discuss the challenges related to the diagnosis, treatment, and awareness of rare diseases.

We extend our appreciation to all the participants who made this workshop a success through their thoughtful contributions.

The workshop’s final report, covering the invaluable input, innovative ideas, and actionable recommendations shared during the workshop, is currently in preparation and will be shared soon.