The Scientific and Ethics Advisory Board (SEAB) includes currently six national and international rare disease experts, Dr. Meral Özgüç (Ankara, Turkey), Dr. Gareth Baynam (Canberra, Australia), Dr. Rita Horvath (Cambridge, UK), Dr. Lucia Monaco (Milan, Italy), Dr. Hakan Örer (Istanbul, Turkey), and Dr. Zeynep Tümer (Copenhagen, Denmark). …