RareBoost Seminars

As part of our commitment to advancing knowledge and fostering collaboration in the field of rare diseases, RareBoost organizes monthly seminars featuring national and international experts. These seminars cover a wide range of topics, from cutting-edge research and clinical insights to rare disease policy, and innovations in diagnostics and treatment.

To ensure broader access to these valuable presentations, we record each seminar (with the presenter’s permission) and make them available to the public via the RareBoost YouTube channel. Below, you can find a collection of these seminars and links to their videos on YouTube.

Prof. Ahmet Gül, “Familial Mediterranean Fever and Beyond: The Spectrum of Pyrin-Associated Autoinflammatory Disorders”

Prof. Devrim Gözüaçık, “Discovery of molecular regulators of autophagy and implications for rare diseases, neurodegeneration and cancer”

Prof. Rumen Stefanov, “Health Policy for Rare Diseases in Bulgaria”

Assoc. Prof. Salman Kirmani, “Delivering Genomics Services in Low-Resource Settings: Lessons from Pakistan”