EVENTSNEWS & EVENTS

We’re talking about Duchenne Muscular Dystrophy (DMD)

September marks Duchenne Muscular Dystrophy (DMD) Awareness Month, a time dedicated to raising awareness on this rare condition.

As part of our ongoing commitment to supporting the rare disease community, RareBoost has organized a series of events under the theme of “Rare Neuromuscular Diseases Awareness Month” throughout September.

Event Spotlight: Duchenne Muscular Dystrophy (DMD) Symposium

We are excited to announce that the first event in this series will be a specialized panel focused on Duchenne Muscular Dystrophy (DMD). This panel is being organized in collaboration with the ‘Hedef DMD’ project and will take place on Wednesday, September 11, 2024, at the Izmir Biomedicine and Genome Center.

This program is specifically designed for primary healthcare workers, including family physicians and family health workers. The goal is to equip these professionals with the most up-to-date knowledge on DMD, ensuring that they are better prepared to support and care for individuals affected by this condition.

Expert speakers who are leaders in the field of DMD will cover a range of critical topics, including:

Diagnosis: Understanding the early signs and symptoms of DMD.

Genetics: Insights into the genetic factors that contribute to DMD.

Treatment Methods: An overview of current and emerging treatment options.

Care: Best practices for managing and supporting individuals living with DMD.

We invite all primary healthcare professionals to join us for this event. Your participation will not only enhance your understanding of Duchenne Muscular Dystrophy but will also contribute to the broader effort to improve care and outcomes for those living with rare neuromuscular diseases.

Event Details:

Date: Wednesday, September 11, 2024

Time: 9:10 – 12:30

Location: Izmir Biomedicine and Genome Center, Aziz Sancar Auditorium

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