Rare and Undiagnosed Diseases Advisory Council Met on March 6th
Within the scope of the Rareboost ERAChair project, we bring together clinical researchers in Izmir and the Aegean region with
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NEWS
Meeting with Limb-Girdle Muscular Dystrophy patient representatives and researchers
On March 1st, LGMD patient representatives Şenay Kundakçı and Pınar Bahçıvan, Assoc. Prof. Nadir Koçak and Lecturer Dr. Özkan Bağcı
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Rare Disease Day Panel Sheds Light on Patient Challenges and Advocates for Patient-Centric Solutions
The Rare Disease Day panel hosted by the EU-funded RareBoost project at Izmir Biomedicine and Genome Center on February 29,
Read MoreResearch on Rahman Syndrome delivers a novel tool to study the rare genetic condition
IBG Rare and Undiagnosed Diseases Platform Member Dr. Kasim Diril’s group published a study on Rahman Syndrome in FEBS Open Bio
Read MoreRare and Undiagnosed Diseases Research Area Stakeholders Status and Needs Assessment Workshop
As part of the RareBoost project, “Rare and Undiagnosed Diseases Research Area Stakeholders Status and Needs Assessment Workshop” was held
Read MoreRare and Undiagnosed Diseases Research Area Stakeholders Status and Needs Assessment Workshop
Within the scope of the RareBoost ERA Chair project supported by the European Union H2020 program at Izmir Biomedicine and
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