RareBoost Scientific and Ethical Board met at IBG for the annual board meeting
On June 10th 2024, the RareBoost Scientific and Ethical Advisory Board (SEAB) met for the oversight duty of the RareBoost
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NEWS & EVENTS
RareBoost Seminar Announcement – Helene and Mikk Cederroth, Wilhelm Foundation
On June 12th at 10am, RareBoost and IBG-Nadir Club are honored to host a special seminar featuring Helene and Mikk
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We visited Izmir City Hospital Medical Genetics Department
The RareBoost team visited Izmir City Hospital Medical Genetics Department. During the meeting, we discussed possible research collaborations on rare
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Rare and Undiagnosed Diseases Advisory Council met on May 8th
Within the scope of the Rareboost ERAChair project, we bring together clinicians in Izmir and the Aegean region with IBG
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Meeting with the Izmir Branch of ALS-MNH Association
Prof. Uğur Özbek (IBG RareBoost ERA Chair), Prof. Ayşe Semra Hız (DEU Department of Pediatric Neurology) and Sinem Aktuğ (IBG
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RareBoost Seminar Announcement – Prof. Yağız Üresin
On May 23rd at 11:00, Prof. Yağız Üresin will give a seminar titled ” Drug development in Rare Diseases” at
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Rareboost Seminar Announcement – Prof. Fatih Ezgü
On April 26th at 11:00, Prof. Fatih Ezgü will give a seminar titled ” Clinical and pre-clinical drug development in
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Rare and Undiagnosed Diseases Advisory Council Met on March 6th
Within the scope of the Rareboost ERAChair project, we bring together clinical researchers in Izmir and the Aegean region with
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Rareboost Seminar Announcement – Prof. Dr. Yasemin Alanay
On March 22nd at 11:00, Prof. Yasemin Alanay will give a seminar titled “Impact of Deep Phenotyping: High Diagnostic Yield
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Meeting with Limb-Girdle Muscular Dystrophy patient representatives and researchers
On March 1st, LGMD patient representatives Şenay Kundakçı and Pınar Bahçıvan, Assoc. Prof. Nadir Koçak and Lecturer Dr. Özkan Bağcı
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