NEWS

The Rare and Undiagnosed Diseases Patient Advisory Council held its 9th meeting on December 11. The meeting began with an

Rare eye diseases are diseases that are seen at a frequency of 1 in 2000 or less in society. Most

On October 8, 2024, RareBoost and IBG-Rare hosted Deniz Yilmaz Atakay, Head of the Rare Diseases Federation, for a productive

The DMD Symposium was organized by RareBoost at Izmir Biomedicine and Genome Center (IBG) within the scope of Duchenne Muscular

European Partnership Opens a New Era in Rare Disease Research The European Rare Diseases Research Alliance (ERDERA) kicks off this

RareBoost team joined the 13th Conference of Undiagnosed Diseases Network International in Seoul, Korea. RareBoost ERA Chair Prof. Uğur Özbek

The IBG-Rare Club had the privilege of hosting Helene and Mikk Cederroth at the IBG Center on June 12, 2024.

On June 10th 2024, the RareBoost Scientific and Ethical Advisory Board (SEAB) met for the oversight duty of the RareBoost

The RareBoost team visited Izmir City Hospital Medical Genetics Department. During the meeting, we discussed possible research collaborations on rare

Prof. Uğur Özbek (IBG RareBoost ERA Chair), Prof. Ayşe Semra Hız (DEU Department of Pediatric Neurology) and Sinem Aktuğ (IBG